Wednesday, February 15, 2017

OIT HAS STARTED!

Kyzer started OIT on Tuesday, February 7th.  The day did not go as I imagined.  Tom, my husband, was sick (again!) so he didn't come with us.  Since he stayed home, I decided to leave Hendrick at home.  I knew it was going to be a long day in the allergist's office, and he wasn't going to have fun.

I got up at 5:45 am and woke Kyzer up around 6:15 am.  We left at 6:30 am to make the 9:00 am appointment.  I had not slept great the past 2 nights.  I, myself, was not feeling great.  I was a ball of nerves, but I was also dealing with the sudden loss of my dad.  I was a walking zombie.  I was overwhelmed with grief.  Stressed to the max.  My head was pounding.  My body was hating me.

All of this overshadowed what an exciting day this was for Kyzer.  I did the best I could.  I had imagined the day more joyful.  I had imagined me ordering him a t-shirt with a powerful statement on it about 'crushing peanuts'.  I had imagined us playing 'fight songs' about courage and perseverance.  Instead, during his appointment, I was receiving texts about my dad and about funeral arrangements.  My stomach was in knots.  I could barely hold my eyes open.  I just wanted to curl up into a ball in a dark room and stay for days.



Alas, the appointment started and ended with no excitement...and this was a GREAT thing!!  Kyzer was super brave.  Never hesitated when taking a dose.  He started with a dose, and then it was slowly increased 19 times during that day.  We were there about 6.5 hours total.  The dose is liquid form right now which is grape kool-aid which we discovered he does not like.  (My kids have never had kool-aid :-)



Kyzer kept busy watching videos on his i-pad, playing Solitaire, getting his Valentine cards ready, and I managed to play a few rounds of UNO with him.  We ate the lunch I brought for us (tortellini) and snacks.  It was a nice, boring day.  (After his 7th dose, he did complain of having tummy pain, but it subsided very quickly on it's own).

He has now taken 8 doses at home with absolutely no issues.  Nada.  He doses in the morning around 9:15, and then just sits and watches videos for 2 hours...or we start school work.  He has to stay calm the first 2 hours after dosing.

We did have a crazy thing happen over the weekend.  We went out of town for my dad's 'Celebration of Life' get-together.  We stayed in a hotel, and the hotel refrigerator completely froze the peanut solution rock solid.  I panicked thinking it was ruined.  I texted his allergist asking what to do, and he very promptly texted me back.  Told me to just let it thaw, shake, and dose.  That's what we did, and all was well.


Picture of the solution after 
it had thawed out at the hotel.


Kyzer's next appointment is February 28th.  This will be his first updose appointment.  THIS is the appointment (and every updose appointment) that will stress me out.  Flashbacks of his initial reaction to tasting peanut butter will be what I will be remembering.  That is something I never want to relive.  For now, we are celebrating that he has been safe while taking his current dose!



First day of OIT complete!!

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