Friday, March 17, 2017

2nd Updose

I don't know if I will blog about every updose appointment, but right now, while this is all still so new to us, I'm blogging away!  This journey is so mind-blowing to us that I want to document as much as I can.

Tuesday, March 14th was Kyzer's 2nd updose appointment.  Tom was out of town for work so little brother, Hendrick, came to the appointment with us.  We were expecting snow and nasty road conditions that morning, but thankfully, we got very little snow and the roads were all fine.  We left our house at 6:00 am and got to the appointment around 8:30 am....a whole 30 minutes early.  We all ate donuts in the car before we went inside. (I've been buying donuts from Aldi's...which is new for us!  We normally avoid donuts, but these have proven to be safe for Kyzer).


Waiting to get his vitals checked
(and little brother).



 Up first, Kyzer's vitals were taken, then the doctor came in to listen to him breath.  He asked how everything was going, and I told him that Kyzer has experienced some symptoms that I'm not sure if they are OIT related or not.


Getting his heart rate checked.


 On Saturday, while we were in Lowe's, Kyzer all of a sudden became very lethargic.  He could barely keep his eyes open and said he was 'just so sleepy'.  This is VERY VERY VERY uncommon for him.  (The kid doesn't 'get sleepy' even at bedtime!  He stopped napping right at 24-months-old because he does not like to sleep!).  The lethargy lasted for a few minutes, but then came back within the hour, and again lasted a few minutes.  The doctor said 'lethargy was not a symptom of an allergy reaction' so he was not concerned....but I've known lethargy TO be a symptom from my 'very mom-professional research'.    :-)    Also, one day last week, Kyzer had a throat issue.  He, all of a sudden, grabbed his throat like in a choking manner.  I, of course, freaked a little.  He said that 'it felt weird' and that it felt better when he swallowed.  Within 30 seconds, it felt fine.   The doctor said he felt fine proceeding with the updose that day....so we did.



Chugging water after swallowing his dose.


Little brother patiently waiting.



His updose went fine.  They only have us stay for 45 minutes for observation after he swallows it.  He still does not like the taste of grape kool-aid.  If that is the only 'problem' we have, then I will take it!!


Going home!!!






This is what it looks like to measure out the dose at home.
You have to stick the syringe into the bottle, 
tip the bottle upside down, 
then pull down on the syringe to the desired amount.  



On March 12th, Kyzer turned 12!!  
I can't believe he is 12!!


Thursday, March 2, 2017

1st Updose

On February 28th, Kyzer had his first updose appointment.  We left our house at 6:15 am and arrived 20 minutes early for his 9:00 am appointment.   He climbed into the back and got cozy with his blanket and pillow until we had to go in.  It was a nasty, rainy day.

 Resting in the back of the car.  



It was a bit less daunting prepping for this appointment because I didn't have to pack food for all day.  When you do updose appointments, you should only be there for an hour...if all goes well.   I had him eat a donut at 7:15, then 2 more donuts right before we went into his appointment.  The point of this was to make sure he had carbs in his belly before the dose.

We first went into an exam room.  The nurse took his blood pressure and checked his heart rate.  Then the doctor came in and listened to his lungs.  Kyzer has been fighting me on taking his Flonase for his seasonal allergies so the doctor reiterated why it was important to take it.  Told him it wasn't just 'mom's orders to take it, but doctor's orders too.'  The doctor told me that since Kyzer is turning 12 in March that he can now take adult doses of medications (for his Allegra and Benadryl).



Getting his blood pressure checked.  



So his dose was given at 9:15.  It was the same amount of milligrams of peanuts as his first dose, but this time it was double the milliliters of liquid.  He so does not like grape kool-aid so with the double the liquid, he so does not like the taste even more now.  However, he doesn't care.  He will do whatever it takes to become desensitized to peanuts.


So happy to be on this journey!



We will go back in two weeks to have his next updose.  On the way home, he asked if we could stop at Popeye's for lunch.  It's one of his favorite restaurants.  When you are brave enough to put a potentially lethal object into your mouth in hopes of tricking your body into thinking it's no longer allergic to it., your mom says, "Absolutely!" 


He loves fried chicken!